Sep 24

Some Big News for Us

A few weeks ago when we went in for the mid-pregnancy ultrasound we were told the heartbreaking news that our baby would be born with a cleft lip and palate. It was devastating to us, mostly because we didn’t know anything about it. As common as complications in pregnancy are, anything other than a healthy pregnancy is shocking and very stressful. The good news is after some tests the doctors believe it to be an isolated issue, meaning hopefully everything else will be healthy. I got in touch with a few people who have been through this and they were very helpful and informative, reassuring us that while the first year will be very challenging with feeding issues, and surgeries–that for the most part by about one year of age their lives had returned to “normal” and they have beautiful happy babies.

It is overwhelming when I think about what this sweet little baby is going to have to go through but we have come to terms with it and are very hopeful that things will turn out ok. We are now doing our best to prepare for the happy arrival of our new baby boy.

photo of Moses by Aubrey Trinnaman

156 Comments

  • Happenstance says:

    I'm so sorry that you've gotten this stressful information during your pregnancy. Anything short of "your baby is 110% healthy is indeed nerve-wracking (I have 2 kids). But once his little surgeries are done I'm sure all of this will be but a memory. I will say a little prayer for him (and for your peace of mind:).

  • Anonymous says:

    My heart goes out to you. What a blessing that he has you as parents. 34 years ago one of my siblings was born with a cleft lip and pallet and it is not noticeable at all today.
    My mother was (poorly) advised to never take a picture of that side of my brothers face and she regrets that decision to this day. Take many photos of your sweet baby boy and his cleft lip/pallet (I am sure you will)!

  • Meg says:

    Hi Jordan,

    Congratulations on your beautiful new son. I was especially touched when I saw his photograph; my cousin was born with a cleft palette 12 years ago and my aunt had a very difficult time with feeding. Today, she is a beautiful, kind, and perfectly healthy girl. My son was born six months ago with both of his feet severely clubbed and we have had to have his legs in casts, surgery, and now in leg braces, but he is strong and cheerful and we are optimistic that he will walk without trouble in a few months. Having a child with medical problems can be very isolating; it has really helped m to be able to talk to other mothers who have had similar experiences. God bless your family and I wish you all courage and good health over the next year.

  • Downtown Girl says:

    My first visit to your blog. I maybe a stranger but I am sending you lots and lots of prayers. Your baby boy is adorable. I just had a baby girl on January 19. I think each and every baby is a miracle.
    God bless.

  • Kim says:

    They do so many of these surgeries that it will be perfect! No worries!

  • Kohli says:

    What a sweetie pie you have! I am a bit late to the game on this, but hope that you are all doing well. My father is a pediatric plastic surgeon specializing in Craniofacial deformities who has been in practice for over 33 years. I love hearing his stories of patients and how they are doing years down the line. I assume that you have lots of great resources but if you are interested in any more I would be happy to round up some! Happy to hear that these first surgeries are out of the way! Happy new year!

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